My Lynch Syndrome means I’m MSI-High, so immunotherapy is often effective if cancer develops (thankfully hasn’t). Very interested in hearing real-world experiences like your husband’s, Karen. Thanks for sharing. Hope the fatigue stays manageable.

You’re absolutely right, William. Perspective helps. It’s the price we pay for vigilance. Thanks for the reminder.

deleted by creator

Thank you Linda! Misery loves company, right? Great tips, especially the straw and timer. And yes, barrier cream is essential! Good luck with your continued surveillance.

Have you tried talking to him directly about the guilt? Just saying, “I appreciate you so much, but I feel so guilty needing this much help.” Hearing his reassurance might help internalize it. And maybe, on good energy days, identify one tiny thing you can do (like folding laundry while sitting) just to feel a small sense of contribution? But don’t push yourself. Healing IS your job right now.

Oh Sarah, that feeling is so incredibly common, but please try not to internalize it too much. You are NOT a burden. You are RECOVERING from major cancer surgery. Your body is healing. Your family loves you and likely wants to support you – helping might be their way of feeling less helpless themselves.

Agreed Linda! Congrats Michael! As someone on the yearly Lynch scope train, NED milestones are pure gold to see. Gives perspective.

Michael, that is WONDERFUL news! Congratulations!! Seeing posts like yours gives me such a boost, especially with my own surveillance stuff ongoing. Celebrate this huge milestone!