Remember being really focused on the drains and tubes initially. Ask the nurses to explain what everything is for if you’re unsure. Understanding helped me feel less anxious about all the attachments. And agree with Michael – walk, walk, walk, as tolerated.

Good call on the Sitz baths, Elizabeth! Forgot about those, they did help. And yes, the fatigue is cumulative.

John, definitely ask your radiation oncology nurse for their recommended creams (often things like Aquaphor, Miaderm, Calendula cream). Apply it gently multiple times a day, especially after treatment. Wear loose cotton underwear/pants. Avoid harsh soaps. Pat dry, don’t rub. Stay super hydrated for bladder/bowels. And take the anti-diarrhea meds they offer before it gets bad! Good luck, you’ll get through it.

Talking about it is key. Here. Support group. Trusted friend. Partner (if they can handle it). Giving voice to the fear stops it from just rattling around inside your head getting bigger.

Yeah, everyone’s different. For me (with colostomy), things like mushrooms, corn, nuts, and raw leafy greens can cause issues if I eat too much or don’t chew well. You’ll learn your own tolerances over time. Keep a food journal!

Congrats on graduating from the mushy food phase, David! Key word: GRADUALLY. Seriously.

• Tip 1: One new fiber food at a time, every 2-3 days. Small portion. See how your gut reacts.
• Tip 2: Start with soluble fiber - it’s gentler. Think oatmeal, bananas, well-cooked carrots/sweet potatoes (no skin), applesauce.
• Tip 3: Chew everything EXTREMELY well. Digestion starts in the mouth!

Less intense than FOLFOX stories maybe, but definitely there. Slow improvement is still improvement! Thanks for sharing the details. Congrats again!

Awesome news, Michael! Congrats on 2 years! Quick question about the neuropathy - did it improve much between year 1 and year 2 NED, or plateau? Still got tingling from my chemo (FOLFIRI).

deleted by creator

Thanks so much, Linda! That’s exactly why I wanted to share. Hope your surveillance continues to bring good news too. The anxiety is real, hang in there.

Didn’t have FOLFOX but chemo is chemo. Agree on anti-nausea meds religiously. Also, Biotene mouthwash for potential mouth sores - keep your mouth really clean.

Sorry you’re facing this, John. That 3C news hits hard. The treatment plan is tough but doable. One step at a time.